The guest, a senior physiotherapist, was repeatedly told her pain was spinal. Her endometriosis was wrapping around her sciatic and femoral nerves, causing symptoms that even orthopedic specialists misidentified, delaying her hysterectomy by two years.
Despite a confirmed diagnosis and her expertise as a physiotherapist, the guest was forced to undergo nine months of painful Zolidex injections and unnecessary physiotherapy consultations before she could get the hysterectomy she was fighting for.
Patients are frequently told ultrasounds will detect endometriosis, but this is often false. The guest's normal ultrasound was followed by a laparoscopy revealing stage 4 disease, highlighting a critical diagnostic gap that forces patients to pay for definitive procedures.
The guest suggests her condition significantly worsened during the pandemic due to high stress and a potential hormone imbalance (estrogen dominance). She found that an anti-inflammatory diet significantly helped manage the pain, linking lifestyle factors to symptom severity.
The guest, a senior physiotherapist, faced extreme dismissal from doctors. One questioned her confirmed Stage 4 diagnosis, while another accused her of self-diagnosing due to her profession, refusing a gynecology referral and insisting on more physiotherapy.
Paying for a private laparoscopy that confirms severe endometriosis does not guarantee a smoother journey in the public system. The guest struggled to get her public (NHS) team to acknowledge the results due to a lack of communication and data sharing between sectors.
The guest described hiding her pain so much that it resulted in a constant grimace or 'resting bitch face'. After her hysterectomy, multiple people commented on the visible change in her face, demonstrating how profoundly untreated chronic pain alters physical appearance.